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Reviewed by Kayleigh-Ann Clegg, PhD
Scientific News Editor @ JMIR Publications with a diverse background in clinical psychology, academic research, and digital health program development. I'm passionate about knowledge translation and accessibility, as well as data- and values-driven innovation. My goal is to make vital scientific knowledge clear and accessible to everyone so that we can better our lives and the world around us.
fhir4pharma: Digitalizing Clinical Trial Protocols with FHIR
Clinical trials rely heavily on the Schedule of Activities (SoAs), the detailed roadmap that dictates what data must be collected and precisely when. Traditionally, this roadmap is presented as a static, tabular chart within the study protocol. However, real-world research is rarely static. Patients miss visits, unexpected events occur, and complex study designs (like in oncology) require multiple treatment cycles and conditional branching.
Synthetic Data: Solving the Clinical Trial Privacy Paradox
The foundation of modern, data-driven medicine rests on high-quality empirical evidence, primarily derived from Randomized Clinical Trials (RCTs). However, sharing the individual patient data (IPD) from these trials is heavily restricted by regulatory frameworks. For example, the EU’s General Data Protection Regulation (GDPR) which aims to protect patient privacy. This "privacy paradox" can hinder innovation, preventing researchers from reusing valuable data to develop predictive models or external control arms.
How Social Robots May Empower Care for People with Intellectual Disabilities
Labor shortages are straining healthcare systems worldwide, severely challenging their ability to sustain high-quality, person-centered care, especially for people with intellectual disabilities. As organizations search for innovative assistants, social robots are moving from concept to reality, showing potential to support both clients and overstretched professional caregivers.
Celebrating World Diabetes Day with JMIR Diabetes
November 14th marks World Diabetes Day, a critical moment to raise global awareness of a condition affecting hundreds of millions worldwide. This day, commemorating the birthday of Sir Frederick Banting, co-discoverer of insulin, is a reminder of both historical medical breakthroughs and the urgent need for continuous innovation in prevention, management, and care.
Ethical Empowerment: Designing a Digital Ecosystem for Mental Well-Being
Mental health and well-being are critical not only for individuals, but also for society and the economy. Yet, current support systems often suffer from capacity limitations and fragmented digital tools, highlighting the need for a more integrated approach that facilitates scalable, proactive care.
The Digital Catalysts: A Framework for Next-Generation Health Games
Noncommunicable diseases (NCDs), such as diabetes, cardiovascular diseases, and various cancers, are responsible for a staggering 74% of all global deaths annually. Modifiable behavioral risk factors – like poor diet, physical inactivity, and smoking – contribute to many of these diseases. Serious games and gamified applications hold immense potential to help users change their behavior and reduce their risk, but the impact of most existing solutions is limited by interoperability issues. That is, many gamified solutions operate in isolation—they cannot talk to each other or be easily integrated with other patient data in the broader healthcare system.
How Celebrity News Impacts Cancer Screening in Japan
October is Breast Cancer Awareness Month in Canada. As part of our commitment to open science, JMIR Publications is highlighting research published in our journals aimed at understanding and combating this disease. We hope this research reaches a wide audience, empowering people to learn more about their risk and risk mitigation strategies. Understanding what motivates people to seek screening is paramount to reducing breast cancer mortality.
The Damage Done: Could Epstein-Barr Increase Breast Cancer Risk?
October is Breast Cancer Awareness Month in Canada. As part of our commitment to open science, JMIR Publications is highlighting research published in our journals aimed at understanding and combating this disease. Globally, more than 2.3 million women were diagnosed with breast cancer in 2022 1, underscoring the vital need for research into the disease's causes. We hope this research reaches a wide audience, empowering people to learn more about their risk and risk mitigation strategies.
Reaching the Hard-to-Reach: Recruiting for Breast Cancer Research
October is Breast Cancer Awareness Month in Canada. As part of our commitment to open science, JMIR Publications is highlighting research published in our journals aimed at understanding and combating this disease. We hope this research reaches a wide audience and empowers people to learn more about their risk and risk mitigation strategies.
